🙋 Being an advocate for yourself in the medical world: battles and gaslighting experience.
02:39🌟 Jane advocating for herself in the medical system started when she was 16: when you are asking questions for a reason.
03:39🤕 We fractured the healthcare system: healthcare is a money-making business, and it is hard to navigate that.
06:13🤰 Your birth plan is a joke for nurses in birthing units.
09:41❗ How the system works and how to work the system: some meds are not good to use.
11:51🤩 Caught off guard in the hospital office: What if we could have a patient -advocate be available to patients?
16:41🙁 Discrimination that Jane experienced with care: the difference between tolerance and acceptance.
20:05ℹ️ We can’t solve problems overnight: we can much more easily arm ourselves with information.
23:35👧 Her parents were told that she was going to be blind and intellectually disabled: Jane’s diagnosis and lack of patient education about her immune system.
28:36🦆 We have to take responsibility for our own health. We’re not sitting ducks.
32:00🤦♀️ Alcohol, psychedelics, and sugar in our society.
34:55😇 The power of hearing other people’s stories: Jane is an end-of-life doula, but it would be great to have a medical doula in our system.
37:00Links